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Links to Cancer Organizations

There are thousands of cancer resources on the Internet. How do you find the most helpful and reliable ones? We’ve tried to pick the best from the pot for you here! This section features government, professional, and non-profit resources focused on advocacy, education, support, site specific cancers, and more.

CISN also recommends the National Coalition for Cancer Survivorship’s Resource Guide at: www.canceradvocacy.org. The guide contains over 500 associations, organizations, websites, and other resources focused on disease-specific cancers, cancer support, survivorship, quality of life, and more.

Resource Link Index:

 


Top Cancer Resources

American Association of Cancer Research
http://www.aacr.org/

The AACR is the oldest and largest scientific organization in the world focused on every aspect of high-quality, innovative cancer research. The AACR is the authoritative source of information about advances in the causes, diagnosis, treatment and prevention of cancer. By accelerating the growth and spread of new knowledge about cancer, the AACR is on the front lines of the quest for prevention and cure.

American Cancer Society (ACS)
http://www.cancer.org

ACS works to eliminate cancer as a major health problem by preventing cancer, saving lives, and diminishing suffering from cancer, through research, education, advocacy, and service.


 
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Annie Appleseed Project
http://www.annieappleseedproject.org

From its inception the Annie Appleseed Project decided to Challenge the Existing treatment paradigm, to Question the existing research methods and subjects, and to Propose new directions for both, ending with true Integrative Oncology. Thus the program name Cheqpt, designed to bring complementary, alternative therapies to the mainstream as soon as may be, while serving as a place where all ideas are scrutinized.

Assistance Speaking to Your Doctor about Treatment
https://www.nccn.org/patients/

Association of Cancer Online Resources (ACOR)
http://www.acor.org

ACOR aims to provide information and support to cancer patients and those who care for them through the creation and maintenance of cancer-related Internet mailing lists and Web-based resources, provide subscribers with access to varied and credible information sources through Internet resource development and partnership with trusted content providers, and more.

CancerCare
http://www.cancercare.org

Cancer Care provides free, professional support services to anyone affected by cancer: people with cancer, caregivers, children, loved ones, and the bereaved. Cancer Care programs – including counseling, education, financial assistance and practical help – are provided by trained oncology social workers and are completely free of charge. CancerCare offers educational materials and some financial support.

Cancer.net
http://www.cancer.net

Cancer.Net, formerly People Living With Cancer, brings the expertise and resources of the American Society of Clinical Oncology (ASCO) to people living with cancer and those who care for and care about them. ASCO is composed of nearly 25,000 oncologists globally who are widely viewed as the leaders in advancing cancer care. All the information and content on Cancer.Net was developed and approved by the cancer doctors at ASCO.

Center for Advancement in Cancer Education (CACE)
http://www.beatcancer.org

CACE is an education, counseling and referral agency providing nutritional, immunological and psychological resources for cancer prevention, prevention of recurrence, and support during and after treatment.

Coalition of Cancer Cooperative Groups
http://www.cancertrialshelp.org

The Coalition of Cancer Cooperative Groups is a nonprofit organization whose mission is to improve the quality of life and survival of cancer patients by increasing participation in cancer clinical trials. They provide the most up to date information about available clinical trials.

Collaborative for Health and the Environment (CHE)
http://www.healthandenvironment.org

CHE is a diverse partnership of individuals and organizations working collectively to advance knowledge and effective action to address growing concerns about the links between human health and environmental factors.

Financial Resources for Cancer Patients
http://www.cancer.net/navigating-cancer-care/financial-considerations/financial-resources

Gilda’s Club Worldwide
http://www.gildasclub.org

Gilda’s Club is a network of affiliate clubhouses where men, women, and children living with cancer, as well as their friends and families, meet to learn how to live with cancer, whatever the outcome.

Lance Armstrong Foundation (LAF)
http://www.laf.org

LAF unites people through programs and experiences to empower cancer survivors to live life on their own terms and to raise awareness and funds for the fight against cancer. They focus on cancer prevention, access to screening and care, research and quality of life for cancer survivors.

Looking Good with Cancer: Tips for Looking Your Best
https://www.retailmenot.com/blog/tips-for-looking-your-best-while-dealing-with-cancer.html

Mayo Clinic
http://www.mayoclinic.com

Mayo Clinic's three main Web sites provide information and services from the world's first and largest integrated, not-for-profit group medical practice. Manage your health with information and tools that reflect the expertise of Mayo's 2,500 physicians and scientists, learn how to access medical services, and discover Mayo's medical research and education offerings.

National Cancer Institute (NCI)
http://www.cancer.gov

NCI coordinates the National Cancer Program, which conducts and supports research, training, health information dissemination, and other programs with respect to the cause, diagnosis, prevention, and treatment of cancer, rehabilitation from cancer, and the continuing care of cancer patients and the families of cancer patients.

National Coalition for Cancer Survivorship (NCCS)
http://www.canceradvocacy.org

NCCS is the oldest survivor-led cancer advocacy organization in the country advocating for quality cancer care for all Americans and empowering cancer survivors. They offer educational materials related to cancer.

National Comprehensive Cancer Network (NCCN)
http://www.nccn.org

NCCN, an alliance of 21 of the world’s leading cancer centers, is dedicated to improving the quality and effectiveness of care provided to patients with cancer. NCCN provides a source of information to help patients and health professionals make informed decisions about cancer care.

National Patient Advocate Foundation (NPAF)
http://www.npaf.org

NPAF provides the patient voice in improving access to, and reimbursement for, high-quality healthcare through regulatory and legislative reform at the state and federal levels. NPAF translates the experience of millions of patients who have been helped by our companion, Patient Advocate Foundation, which provides professional case management services to individuals facing barriers to healthcare access for chronic and disabling disease, medical debt crisis and employment-related issues at no cost.

Oncology Nurses Society
http://www.ons.org

The Oncology Nursing Society (ONS) is a professional organization of over 35,000 registered nurses and other healthcare providers dedicated to excellence in patient care, education, research, and administration in oncology nursing. It's also the largest professional oncology association in the world. They have a wonderful patient education section.

Online Communities For Cancer Patients
http://www.acor.org/

Prevent Cancer Foundation
http://www.preventcancer.org

The mission of the Prevent Cancer Foundation is cancer prevention and early detection through research, education and community outreach to all populations, including children and the underserved.

Resources For Future Nurses
http://www.pacificmedicalacls.com/acls-online-library-nurse-training.html

The Wellness Community
http://www.wellness-community.org

The Wellness Community is an organization dedicated to providing free support, education and hope to people with cancer and their loved ones. Through participation in professionally-led support groups, educational workshops, nutrition and exercise programs, and stress-reduction classes, people affected by cancer learn vital skills that enable them to regain control, reduce isolation and restore hope regardless of the stage of their disease.

World Health Organization
http://www.who.org

WHO is the directing and coordinating authority for health within the United Nations system. It is responsible for providing leadership on global health matters, shaping the health research agenda, setting norms and standards, articulating evidence-based policy options, providing technical support to countries and monitoring and assessing health trends.

 

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Site Specific Cancer Resources

Bone:

Kristen Ann Carr Sarcoma Fund
http://www.sacroma.org

The Kristen Ann Carr Fund provides grants for cancer research and seeks to improve all aspects of cancer patient life with an emphasis on adolescents and young adults.

Sarcoma Alliance (SA)
http://www.sarcomaalliance.com

SA provides guidance, education, and support for those affected by sarcoma free of charge.

Sarcoma Foundation of America (SFA)
http://www.curesarcoma.org

SFA focuses on supporting sarcoma research, advocating for increased government funding, creating alliances with companies developing sarcoma treatments, increasing public awareness regarding early detection, educating sarcoma patients about access to optimal sarcoma care, and more.

 

Brain:

American Brain Tumor Association
http://www.abta.org

ABTA exists to eliminate brain tumors through research and to meet the needs of brain tumor patients and their families through education, support, and advocacy.

The Brain Tumor Society (BTS)
http://www.tbts.org

BTS strives to improve the quality of life of brain tumor patients, survivors, and their families by providing access to psychosocial support, information and resources. They also raise funds to advance carefully-selected research projects to enhance treatments and to find a cure.

Children’s Brain Tumor Foundation (CBTF)
http://www.cbtf.org

CBTF exists to improve the treatment, quality of life and the long term outlook for children with brain and spinal cord tumors through research, support, education, and advocacy to families and survivors.

North American Brain Tumor Coalition (NABTC)
http://www.nabraintumor.org

NABTC is dedicated to improving the prognosis and quality of life of brain tumor patients through educating policymakers and advocating for increased research into brain tumor treatments, causes, and rehabilitations.

National Brain Tumor Foundation (NBTF)
http://www.braintumor.org

NBTF is dedicated to promoting a cure for brain tumors, improving the quality of life and giving hope to the brain tumor community by funding meaningful research and providing patient resources, timely information and education.

 

Breast:

Breastcancer.org
http://www.breastcancer.org

The breastcancer.org is dedicated to providing the most reliable, complete, and up-to-date information about breast cancer.

Breast Cancer Action (BCA)
http://www.bcaction.org

BCA carries the voices of people affected by breast cancer to inspire and compel the changes necessary to end the breast cancer epidemic by providing information, organization people, and advocating for policy change.

Breast Cancer Fund (BCF)
http://www.breastcancerfund.org

BCF identifies – and advocates for elimination of – the environmental and other preventable causes of the disease. 

Komen for the Cure
http://www.cms.komen.org

Komen for the Cure is committed to saving lives, empowering people, ensuring quality care for all and energizing science to find the cures.

National Breast Cancer Coalition (NBCC)
http://www.stopbreastcancer.org

NBCC’s mission is to eradicate breast cancer. They inform, train, and direct patients and others in effective advocacy efforts. NBCC’s three primary goals are promoting research, improving access, and increasing influence.

 

Digestive/Gastrointestinal:

Colon Cancer Alliance (CCA)
http://www.ccalliance.org

CCA provides patient support, education, research and advocacy across North America.

Colorectal Cancer Coalition (C3)
http://www.fightcolorectalcancer.org

C3 fights colorectal cancer through research, empowerment and access. C3 pushes for research to improve screening, diagnosis, and treatment of colorectal cancer; for policy decisions that make the most effective colorectal cancer prevention and treatment available to all; and for increased awareness that colorectal cancer is preventable, treatable, and beatable.

Pancreatic Cancer Action Network (PANCAN)
http://www.pancan.org

PANCAN is a network of people dedicated to working together to advance research, support patients and create hope for those affected by pancreatic cancer.

 

Endocrine:

Thyroid Cancer Survivor’s Association (ThyCa)
http://www.thyca.org

ThyCA is a network of services that link thyroid cancer survivors and health care professionals around the world focused on education, support, and funding research.

 

Eye:

Retinoblastoma International (RBI)
http://www.retinoblastoma.net

RBI is committed to support education, clinical care, research, early diagnosis, and awareness.

 

Genitourinary:

Alliance for Prostate Cancer Prevention (APCaP)
http://www.apcap.org

APCaP seeks to enhance and promote prostate cancer awareness, education, and research with emphasis on prevention for men in their 40s and 50s.

Bladder Cancer Advocacy Network (BCAN)
http://www.bcan.org

BCAN works to raise awareness of bladder cancer among the general public and medical community; to advocate for funds to research programs directed to bladder cancer; and, to work with and provide financial assistance and grants for bladder cancer research.

Kidney Cancer Association (KCA)
http://www.kidneycancerassociation.com

KCA funds research projects, educates families and physicians, and advocates on behalf of patients through local and national advocacy.

Prostate Cancer Foundation (PCF)
http://www.prostatecancerfoundation.com

PCF funds prostate cancer research. They also advocate for greater awareness of prostate cancer and increased government funding.

US TOO International
http://www.ustoo.com

US Too is dedicated to communicating timely and reliable information enabling informed choices regarding detection and treatment of prostate cancer to enhance the quality of life for all those affected by prostate cancer.

 

Gynecological:

Gynecological Cancer Foundation (GCA)
http://www.wcn.org

GCA works to ensure public awareness of gynecologic cancer prevention, early diagnosis and proper treatment, and fund research into gynecological diseases.

National Cervical Cancer Coalition (NCCC)
http://www.nccc-online.org

NCCC focuses on education, support, and advocacy for women affected by cervical cancer.

National Ovarian Cancer Coalition (NOCC)
http://www.ovarian.org

NOCC is committed to raising awareness of ovarian cancer in communities across the country and to providing education, support and hope for women with ovarian cancer and their families.

Ovarian Cancer National Alliance (OCNA)
http://www.ovariancancer.org

OCNA educates and advocates on behalf of women affected by ovarian cancer.

Ovarian Cancer Research Fund (OCRF)
http:/www.ocrf.org

OCRF is focused on funding research to find a method of early detection and ultimately a cure for ovarian cancer.

 

Head and Neck:

Support for People with Oral and Head and Neck Cancer (SPOHNC)
http://www.spohnc.org

SPOHNC is dedicated to meeting the needs of oral and head and neck cancer patients to address the broad emotional, physical and humanistic needs of this population.

 

Hematologic/Blood:

International Myeloma Foundation (IMF)
http://www.myeloma.org

IMF is dedicated to improving the quality of life of myeloma patients while working toward prevention and a cure.

Leukemia and Lymphoma Society (LLS)
http://www.leukemia-lymphoma.org

LLS works to cure leukemia, lymphoma, Hodgkin's disease and myeloma, and improve the quality of life of patients and their families.

Multiple Myeloma Research Foundation (MMRF)
http://www.multiplemyeloma.org

MMRF’s mission is to urgently and aggressively fund research that will lead to the development of new treatments for multiple myeloma.

 

Lung:

Lung Cancer Alliance (LCA)
http://www.lungcanceralliance.org

LCA is dedicated to patient support and advocacy for people living with lung cancer or those at risk for the disease.

Lung Cancer Online (LCO)
http://www.lungcanceronline.org

LCO aims to improve the quality of care and quality of life for people with lung cancer by funding lung cancer research and providing information to patients and families.

Mesothelioma
https://www.TreatMesothelioma.org

Cancer Treatment Facility Locator
https://www.mesotheliomahelp.org/mesothelioma-hospitals-doctors/

Cancer treatment facility locator was created to allow users to input their current location or zip code, and locate the most suitable cancer-related facilities based on the type of care they seek.

National Lung Cancer Partnership (NLCP)
http://www.nationallungcancerpartnership.org

NLCP works to decrease deaths due to lung cancer, and help patients live longer and better, through research, awareness, and advocacy.

 

Skin:

Skin Cancer Foundation (SCF)
http://www.skincancer.org

SCF works to decrease the incidence of skin cancer through public and professional education, medical training, and research.

 

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Resources For Caregivers

Art Therapy & Cancer: How Art Can Help Those With Cancer
http://www.arttherapyblog.com/c/cancer/

Cancer.gov: Clinical Trials
http://www.cancer.gov/clinicaltrials

Cancer Statistics and Facts
http://seer.cancer.gov/

For Caregivers, Family and Friends - National Cancer Institute
http://www.cancer.gov/cancertopics/coping/familyfriends

Locate an Oncology Specialist
http://www.zocdoc.com/oncologists

 

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Resources For Patient Rights

Identity Theft | Consumer Information
http://www.consumer.ftc.gov/features/feature-0014-identity-theft

Legal Resources for Cancer Patients
https://www.justgreatlawyers.com/legal-resources-for-cancer-patients

Stop Medicare Fraud
http://www.stopmedicarefraud.gov/

 

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Senior Resources

Centers for Medicare and Medicaid: Regulations and Guidance
http://www.cms.gov/Regulations-and-Guidance/Regulations-and-Guidance.html

Resources for Ensuring a Long, Happy and Healthy Life
https://www.kanetix.ca/healthy-life

Search by Insurance for Geriatric Care
http://www.zocdoc.com/insurances

Staying Healthy Over 50
http://www.helpguide.org/life/healthy_aging_seniors_aging_well.htm

 

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