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Understanding Tissue Issues
(Biospecimen) Donation

CISN Summary

       
 

Current research strategies are greatly enhanced by the contribution of tissue by patients - those with cancer and those without.

This is the only way science can make advances in "personalized" medicines so doctors can treat tumors based upon specific targets.

 
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Resources

The National Cancer Institute
http://www.cancer.gov/cancertopics/factsheet/Information/donating-tissue-research

The National Cancer Institute Office of Biorepositories and Biospecimen Research: http://biospecimens.cancer.gov/default.asp

The Centers for Medicare & Medicaid Services (CMS)
http://www.cms.gov/Regulations-and-Guidance/Legislation/CLIA/index.html

References

Weining Tang et al, “DNA Extraction from Formalin-Fixed Paraffin-Embedded Tissue, Cold Spring Harbor Protocols, 2009.

Dry, S, “Who Owns Diagnostic Tissue Blocks?, Lab Medicine, February 2009, Volume 40, Number 2

Consensus Statement: Informed Consent for Genetic Research on Stored Tissue Samples, Journal of the American Medical Association, December 13, 1995

The Center for Disease Control (CDC) Website, www.cdc.gov/cancer/npcr

Sandusky, G, Dumaual, C, and Cheng L, “Human Tissues for Discovery Biomarker Pharmaceutical Research: The Experience of the Indiana University Simon Cancer Center – Lilly Research Labs Tissue/Fluid Biobanks”, Veterinary Pathology 2009 46:2

Compton, C, Ph.D, “Getting to Personalized Medicine: Taking Out the Garbage” Cancer October 15, 2007, Volume 110, Number 8

Sherman, ME, Figueroa, JD, Henry, JE “The Susan G Komen for the Cure Tissue Bank at the IU Simon Cancer Center: A Unique Resource for Defining the “Molecular Biology” of the Breast, Cancer Prevention Research, 2012;5:528-535.

Brothers, KB, Morrison, DR, Clayton, EW 2011. Two large-scale surveys on community attitudes toward an opt-out biobank. American Journal of Medical Genetics Part A 155;2982-2990

Langseth, H, Luostarinen, T, Bray, F, Dillner, J, “Ensuring quality in studies linking cancer registries” Acta Oncologica, 2010;49:368-377’’



 
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“Content Developed September 1, 2012”

 

 
   
 
 
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