CISN - Cancer Research Advocacy

Advocacy

Also in this section:

Below are a few of many online resources for training.

Cancer Information and Support Network

You are on this site now. This site has many good training modules that start off very basic and gradually get more complex in content. Each module also has a quiz, so you can make sure you are grasping the concept before moving to the next module. Once you complete a graded quiz you can download a free PowerPoint slide deck and teachers manual that can be used by you to train others.

The recommended modules are:

CISN instructions:
http://www.cisncancer.org/eTraining/eQuiz_Intro.html

CISN e-Training/Quiz1-Cancer 101: http://www.cisncancer.org/cancer101/index.html

This training is intended for advocates, patients and anyone else who would like a basic understanding of what cancer is. Everyone is encouraged to start here as vocabulary and basic concepts are introduced at this point.

US Cochrane Center: Understanding Evidenced-Based Healthcare
- http://us.cochrane.org/understanding-evidence-based-healthcare-foundation-action
  - This web course has been created by the United States Cochrane Center as part of a project undertaken by Consumers United for Evidence-based Healthcare (CUE), and is designed to help consumer advocates understand the fundamentals of evidence-based healthcare concepts and skills. Registration is open and free of charge. Participants are encouraged to finish the course in three months. We recommend that participants complete only 1-2 modules at a time. Participants must commit to filling out evaluation forms upon completion of each module.

Human Subject Protection Training Certification
The NIH training module can be found at:
- http://grants.nih.gov/grants/policy/hs/training.htm
  - Click on the highlighted "Protecting Human Research Participants”. You can download the entire PDF of the training for reference. There are very short quizzes at the end of 4 sections, the answers can be found in the PDF if you can’t remember.

Alamo Breast Cancer Foundation at San Antonio Breast Cancer Symposium (SABCS)- Alamo Breast Cancer Foundation (ABCF) established the Patient Advocate Program, a component of the San Antonio Breast Cancer Symposium (SABCS). This program is attended by advocates and provides many training opportunities during the Symposium.
- For more information:
  http://www.alamobreastcancer.org/patient-advocate-program/
- Application Requirements

Scientist<->Survivor Program at American Association for Cancer Research (AACR) Annual Meeting – The AACR Scientist<->Survivor Program is a unique program designed to build bridges and unity among the leaders of the scientific and cancer survivor and patient advocacy communities worldwide. The program promotes partnerships and provides attendees the opportunity to meet and interact over several days in a stimulating and engaging atmosphere.
- For more information:
  http://www.aacr.org/AdvocacyPolicy/SurvivorPatientAdvocacy/Pages/scientistharr;survivor-program___403E94.aspx#.VErD09uF9DA

Focus on Research Scholars Program at American Society for Clinical Oncology (ASCO) Annual Meeting – Each year scholars in the RAN Advocate Institute's “Focus on Research” Program attend the American Society of Clinical Oncology's annual meeting. The program includes extensive preparations (attending webinars and developing research skills) on the part of each scholar to prepare them for the meeting.
- For more information:
  http://researchadvocacy.org

Advocacy

Research Advocacy - page 8

Training in Research Advocacy

Below are a few of many online resources for training.

Cancer Information and Support Network