What records are most important?
You will be getting many handouts from various medical team members that you will want to keep in one place. We also suggest that you keep the following information in your binder as well:
- The date you were diagnosed
- The type of cancer you had
- Pathology report(s) that describe the type and stage of cancer
- Places and dates of specific treatment, such as:
- Details of all surgeries
- Sites and total amounts of radiation therapy
- Names and doses of chemotherapy and all other drugs
- Key lab reports, x-ray reports, CT scans, and MRI reports
- List of signs to watch for and possible long-term effects of treatment
- Contact information for all health professionals involved in your treatment and follow-up care
- Any problems that occurred during or after treatment
What are some resources for guidelines about follow-up care?
- Information about supportive care you received (such as special medicines, emotional support, and nutritional supplements)
These organizations have follow-up care guidelines for some cancers. You can use them when you talk with your doctor - they aren't meant to contradict or take the place of your doctor's knowledge or judgment.
Cancer: Keys to Survivorship
Hosted by the National Coalition of Cancer Survivorship and the Leukemia & Lymphoma Society. This program teaches survivors, families, and caregivers the necessary skills to help live with, through, and beyond cancer. A series of seminars focuses on leading healthy lives, preparing for doctor visits, managing side effects, and handling insurance and employment issues. Seminars can be viewed online.
Children’s Oncology Group Long-Term Follow-up Guidelines
The Children's Oncology Group offers long-term follow-up guidelines for survivors of childhood, adolescent, and young adult cancers at: http://www.survivorshipguidelines.org.
Life After Cancer Care
M.D. Anderson’s Cancer Center’s website lists follow-up guidelines for 15 different disease sites. Visit http://www.mdanderson.org/departments/lacc, and click on “Followup Guidelines by Disease.”
People Living With Cancer
The American Society of Clinical Oncology’s People Living with Cancer website has a series of follow-up care guides focused on breast, colorectal, and lung cancers.
The information in this section has been compiled from the National Cancer Institute’s publication “Facing Forward: Life After Cancer Treatments.” Please refer to this document for more detailed information.